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 Cameron Kennedy Diamond
was born April 17, 2000 to BJ and Carol Diamond. Like her
sisters, Amanda and Julia, she was perfect; beautiful with
her Mom's dark hair and eyes and her Dad's great smile.
Now, it's said that the
third child is the strong child. The third child has to
always fight harder for its place in the world. Carol and
BJ both found themselves as the third child in their
families. And both became strong, solid, smart and very
funny...they had to be.
But despite their
awareness of the third child syndrome and the built-in
challenges that come with that position, Cameron's parents
have been completely awed by the strength their third child
would prove to have.
The Tuesday morning after
Memorial Day in 2000, Cam work up with a very slight fever,
but a fever nonetheless. She was just six weeks old. That
morning when Carol took Cam to her pediatrician Dr. Gilliard
in Crofton, he found no discernable cause for the fever but
instead of dismissing it as nothing, prescribing Tylenol and
sending them home, Dr. Gilliard sent Carol and Cameron to
Annapolis Hospital (?) for further tests. He wanted to know
why Cameron had a fever with no attributable symptoms.
That evening they were
transported to the University of Maryland Medical Center in
Baltimore and within 24-hours the doctors were able to
diagnose the cause of Cameron's fever. She had leukemia.
Although considered treatable, her young age and her tiny
size made Cam's chances of surviving the treatment less than
10%.
The rest of that summer
proved challenging as she initially spent weeks at the
hospital and even once released had frequent stays. During
that time, Cameron underwent intense chemotherapy,
radiation, and in November underwent a Bone Marrow
Transplant at Johns Hopkins. There were many very bad days,
but, to the amazement everyone including her doctors, that
little kid kept bouncing back from any and all setbacks.
The years that followed
saw her face challenges related to what her little body
endured that first year. We began giving her daily growth
hormone shots to help her grow; she was prescribed a
medicine that strengthened her heart whose function was on
the lower end; and she took a pill that helped her thyroid
perform properly. Those three prescriptions are still given
to this day. But Cam survived like the brave little
champion she is.
In June 2005, we
celebrated with a "Cam's Cured" party. All family and
friends were present, including her donor, Greg Young and
his family from Alabama. We have come to know the Young’s
and appreciate even more the wonderful people they are.
Unfortunately, two weeks
after that magnificent celebration, Cam developed a cough
that grew into bronchitis and eventually pneumonia. Over
the next 10 months these respiratory episodes reoccurred and
she was diagnosed with asthma.
In May 2006, after a
small yet persistent cough would not go away, we asked for
her doctors to perform any tests necessary to tell us what
was going on – we were convinced this was more than asthma.
That spring and summer we
went through an intense investigative process.
Through a lung
bronchoscopy and a lung biopsy, the doctors were able to
determine she has an interstitial lung disease. We also
decided to address why she was not a good eater. The cause
was due to the lung disease in combination with a newly
discovered hietal hernia. So a feeding tube was surgically
implanted. By the end of July, we were able to give her
feedings while she slept and were treating the lung disease
with steroids. Not only did she gain weight but all
indications were that the lungs were responding to the
steroids.
But nothing is easy…the
steroids coupled with the supplemental feedings and growth
hormones sent her body into a Type 2 Diabetic reaction.
Through discontinuing the hormones, insulin injections, and
tapering down and off of the steroids, the diabetes went
away.
Since the steroids
created complications, we began looking for other
anti-inflammatory medicines to address her lung condition.
It would also allow us to continue her feedings and growth
hormones. Unfortunately, we haven’t been too successful and
are on our third drug in hopes it will improve if not cure
her lungs.
In May 2007 (can everyone
see why we are not big fans of the month of May) Cam battled
yet another bout of pneumonia.
We hope you find
inspiration to use or share her example of strength and
spirit in your life or to share it with someone you care
about.
A young doctor told us on
the day she was diagnosed with leukemia, “You have to have
hope, kids can do amazing things”. Cameron proved him
right.
Thank you for all of your
support, prayers, and love.
The Diamonds
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